Meet Beatrice!
Meet Beatrice, our beautiful 3 year old daughter. Like most toddlers, she is full of joy. She is bright and into everything, eager to explore the world around her. Beatrice is always happy and ready to greet everyone she meets with a big smile and a wave.
In July 2010, we learnt that Beatrice has Type II Spinal Muscular Atrophy (SMA). This, amongst other things, means she will never be able to walk. At first, we were devastated, and it took a while to come to terms with what it meant (though Beatrice was indifferent and, of course, still smiling!).
We now understand that this means action! On a practical level, we must alter our house so that she can use her chair in it and have an easily accessible bedroom, a new car to accommodate Beatrice in a powered chair, and the absolute necessity to have the best means of mobility for Beatrice, as soon as possible, to get the most out of life.
Unfortunately, Government funded departments do not offer funding for the powered chair that was designed specifically for what Beatrice needs to be mobile at this early age.
The early years for Beatrice, as with all children, are very important in learning and development, therefore early access to mobility is imperative.
One of the key attributes of children with SMA is that they are exceptionally intelligent. Limited mobility at an early age, however, can limit opportunities for learning and exploring the child’s environment. We want Beatrice continue to have mobility as close to normal as other toddlers right now! This can only be achieved through purchasing a powered chair with height adjustment which costs £20,000 every five years (please watch the videos to see Beatrice take her very first steps – go to the link at the top right of this page).
We will achieve this. We must achieve this.
Please explore the website to learn more about what we are doing to raise funds.
Anything that you can do to help would be awesome and greatly appreciated.
We regularly update the site, so please come back and visit us soon and do tell your friends!
Thank you for your help and support.
Love to you all,
Andrew and Amy (Beatrice sends you a big smile and a wave too!) xx
On June 17th 2012 Beatrice's father, Andrew, will be taking part in Iron Man Regensburg. This is no mean feat - with a 2.4 mile sea swim, a 112 mile bike and then a marathon- all in 16 hours. He's gone from couch potato to triathlete in under a year, learning how to swim freestyle (he couldn't even put his head under water last year!), ride a bike without falling off (although thanks to clip in pedals he keeps doing this!) and running (well - what HE calls running anyway!). If you'd like to support his efforts, please click the button below. Also have a look at our supporters page to see who's helped to make it happen.
Get Beatrice mobile - mobility is a right, not a privilege.
You can read an article about Beatrice from the Yorkshire Post by clicking here
In July 2010, we learnt that Beatrice has Type II Spinal Muscular Atrophy (SMA). This, amongst other things, means she will never be able to walk. At first, we were devastated, and it took a while to come to terms with what it meant (though Beatrice was indifferent and, of course, still smiling!).
We now understand that this means action! On a practical level, we must alter our house so that she can use her chair in it and have an easily accessible bedroom, a new car to accommodate Beatrice in a powered chair, and the absolute necessity to have the best means of mobility for Beatrice, as soon as possible, to get the most out of life.
Unfortunately, Government funded departments do not offer funding for the powered chair that was designed specifically for what Beatrice needs to be mobile at this early age.
The early years for Beatrice, as with all children, are very important in learning and development, therefore early access to mobility is imperative.
One of the key attributes of children with SMA is that they are exceptionally intelligent. Limited mobility at an early age, however, can limit opportunities for learning and exploring the child’s environment. We want Beatrice continue to have mobility as close to normal as other toddlers right now! This can only be achieved through purchasing a powered chair with height adjustment which costs £20,000 every five years (please watch the videos to see Beatrice take her very first steps – go to the link at the top right of this page).
We will achieve this. We must achieve this.
Please explore the website to learn more about what we are doing to raise funds.
Anything that you can do to help would be awesome and greatly appreciated.
We regularly update the site, so please come back and visit us soon and do tell your friends!
Thank you for your help and support.
Love to you all,
Andrew and Amy (Beatrice sends you a big smile and a wave too!) xx
On June 17th 2012 Beatrice's father, Andrew, will be taking part in Iron Man Regensburg. This is no mean feat - with a 2.4 mile sea swim, a 112 mile bike and then a marathon- all in 16 hours. He's gone from couch potato to triathlete in under a year, learning how to swim freestyle (he couldn't even put his head under water last year!), ride a bike without falling off (although thanks to clip in pedals he keeps doing this!) and running (well - what HE calls running anyway!). If you'd like to support his efforts, please click the button below. Also have a look at our supporters page to see who's helped to make it happen.
Get Beatrice mobile - mobility is a right, not a privilege.
You can read an article about Beatrice from the Yorkshire Post by clicking here